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That Woman
Written 2024-08-31
- whenever I look at women around me, I find it sad how they seem to believe that's what women have to do... and it makes me wonder if men really do like these things...
Sorry, incomprehension soars in me.
Don't understand why women dress
To show their cleavage and forms...
Don't understand why they willingly
Make themselves vulnerable wearing
Long hair, high heels, or skirts...
Don't understand why beauty standards
Have determined they must decorate
Their face with all kinds of cosmetics...
None of it makes sense to me at all.
And none of it strikes me as beautiful;
All looks completely ridiculous to me...
Maybe it's my upbringing and traumas,
But I can't help viewing it as I do,
And can't for the life of me adhere...
I can never be that woman.
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An Explanation
Written 2024-08-31
An explanation about offing myself:
I mean it in the context of my condition.
At some point, I will go, there's no doubt
About that, 'cause there's no way that
I'll go to the end of this deterioration.
My mind is pretty clear on that decision.
Remember that I cannot take any medication
To alleviate the pain... eventually, I won't
Be able to withstand it anymore... so, at some
Point, I will go through the steps to obtain a
Medically-assisted death when the time comes.
Not sure if I would qualify,
But that's where I would start.
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Invasive Preoccupation
Written 2024-08-31
- sorry for my whining... huge preoccupation lately as it's noticeably getting worse now... and I'm really not sure how long before I can't move too much anymore...
a dear friend of mine once jokingly said that if there's such a thing as reincarnation, one would be inclined to believe I must have really got someone's goat in another life... to explain all the seemingly infinite strings of bad luck in my life, as he put it... I thought that was pretty funny...
There are apparently 3 phases to this condition:
1) Hypermobility
2) Pain
3) Stiffening
I'm still inscredibly hypermobile,
But with age, that has decreased
A little; still I'm more flexible than
Most. In the last seven years, I've
Been in the pain phase, and just
Recently, I've begun to feel my
Knees when I walk like they're
Stiffening up some, so I'm thinking (same for my back)
It's a start into the stiffening phase.
Phase 1 and phase 2 entail
Hypermobility, and phase 3
Can elevate phase 2's state,
So it feels like there's no getting
Out of the woods, as it were.
I have so much to look forward
To, don't I? Meh, please excuse
My mood, it's really getting me
Down. I just want to enjoy life.
I do, but it's getting hard to
Feel any bit of enthusiasm
Seeing as there's no bypassing
The inevitable decline to
Complete inability to move
Around with my own body.
I'm so frustrated with this turn of
Events after so many years having
Been crippled by other things.
Seems like I'll never be
Catching any sort of break.
Just frustrated,
Just disappointed.
Trying not to get down.
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Why So Impressed?
Written 2024-08-30
- my job requires me to write a lot of explanations and answers to questions... and I get a lot of reactions from colleagues about how impressed they are about what I write... I don't get it very well...
To be honest, I don't quite get
What people find impressive
About the way I write things...
It may be proper grammar,
And proper spelling throughout,
But it's truly nothing more...
There's nothing special about it,
And to see them react, you'd think
They'd read Mark Twain or the likes...
English is my second language,
And I have a high school level
Of writing skills, that's it...
The same for my language French,
I learned it in elementary, high school,
CEGEP, home and my society, that's it...
No higher education is involved
In my 'skills', I just like to write,
And I like for it to be proper...
But what I write expresses nothing
Grand or of great note, it's certainly
Nothing very smart or too deep either...
So I really don't know what they're
Impressed about, their reaction
Always takes me aback in wonderment...
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I Do Until I Can't Anymore
Written 2024-08-30
- about travelling to a far place with my condition... to assuage their worries... to express mine... not implying the recent failed plans were due to my friends deciding what's best for me... but it is something that has happened before... so I worry a bit about it at times...
If you were wondering,
For sure, travelling is
Incredibly difficult for me
On account of the pain
It generates in my body. (that's aside my intense fright about flying!)
But the thing is, I push
Through all of that, 'cause
I want to be with you,
I want those moments,
And to me, it's all worth it.
I will not stop myself
From doing what I care
To do for as long as I can,
And right now, I can, even
Though with some difficulty.
I know someday it will
Be physically impossible
For me to do any of
These things, so, I'm a bit
On a clock to do them, too.
Yes, it will hurt like hell.
Yes, I will need to recuperate. (that is not to move much for a while)
But, meeting you is more
Important than any of that.
Please don't decide what's
Best for me out of concern.
This condition is a bitch,
But I'm still standing in one
Piece, and I have to take
Advantage of it right now,
'Cause soon, I won't be
Able to do anything much
Anymore, and it'd be very
Saddening to be denied
While I'm still able to.
No worries, I won't arrive
In a heap or anything like that.
I'll be sore as sore can be, (the thing is I'm always sore anyway)
For sure, but what does that
Matter? We'll still be able
To talk together once I'm there.
I really don't see any problem.
You're picturing it from your
Perspective of how you'd feel,
But I'm telling you, I'll be fine.
My happiness will easily toss it,
So please have no worries for me.
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Someday
Written 2024-08-20
- last one...
I'll tell you how it'll happen:
I will kill myself someday.
Not today, not tomorrow,
But deep down, I know it,
It's exactly how it'll turn out.
One day, I won't hold back,
'Cause there's so much one
Can take, and so many efforts
One can make, and peace is
An impossible elusive dream.
I don't have the resources,
Or skills, or wisdom to see
Me through, and the levels
Of exhaustion are killing
Every bit of will out of me.
So although I'm still hanging
On right now, that conclusion is
Purely inevitable, is the truth of it.
One day, I won't fight it anymore,
I'll rejoin that peace I once reached
But was snatched away from...
I remember it, I still crave it,
And I can't shake off my belief
That I should never have survived;
My life ended thirty years ago.
It should have remained ended,
So I know, someday I'll just go for it,
'Cause I'm not good enough to make it
Better for myself, no matter all of my
Efforts, the brokenness will always stay.
There's no two ways about it.
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Ok
Written 2024-08-18
Ah, ok, then.
I'll just shut up now.
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Personal Saviors
Written 2024-08-17
My sons
My husband
My cats
Music
Writing (and of course the PoetBay friends since 2005)
Programming
The world that saved me
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EDS
Written 2024-08-17
- hEDS prevents me from taking any medication 'cause my body reacts very unfavorably to everything I try, always get the worst side-effects possible of the drug... my body is incredibly weird for a lot of things... example, I was allergic to my own maternal milk, for goodness sake... caused huge mastitis and dermatitis... should have seen the doctor's face lol, he'd seen it in his books, but had never come across it in 30 years of practice...
Ehlers-Danlos Syndrome, type hypermobility, is a genetic degenerative condition of the connective tissues (cartilage, tendons, ligaments)... mine have too much room to move around, so any movement can make them either pull, pinch, get stuck, rub which causes a lot of inflammation or injury...
I've had this my whole life, of course, but it used to be an intermittent pain.. in the last 7 years, it's been chronic and I've had a couple episodes of complete immobilisation...
Because of this, the number of travels (going to work, grocery, etc) are carefully calculated in my week and monitored to make sure I don't go over what I can handle physically... any outing must not be a situation where there's walking for more than 15 minutes or else my joints will flare up or get injured and I'll need a couple days of recuperation...
It's definitely noticeably worse lately... and I'm trying to not let it get me down, but... you know...
The relief of physical pain:
A hopeless dream at this point.
It's a chronic state of affairs
With no solution in sight.
As pain increases, my mobility
Decreases right along with it.
And I have to find ways
To not pay attention to it.
But it's getting increasingly
Difficult to achieve 'cause
This body of mine's screaming
All of the damn time now.
Must confess, so exhausted.
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The Unimportant One
Written 2024-08-16
Feeling unimportant,
Somewhat unloved,
And wondering to myself
What's causing this state.
Perhaps it's my binding
My identity and self-worth
In relation to those I love
That affects things this way.
'Cause those I love most have
A tendency to take for granted,
And are often comfortable to
Not take into account my feelings.
I don't believe that they mean ill,
They're just used to me being there,
And me always making concessions,
So I guess it's become invisible.
Little attention is given to me,
And it makes me wonder,
Maybe I've done something wrong
To find myself in this position.
Something's off, that's for sure,
But I can't figure it out clearly.
All I've ever done is love them,
Seems it's not a feeling they share.
I don't know.
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